Disease Specific Panels
Undiagnosed Autoimmune Disease
We are putting together disease specific stakeholder panels that will be tasked with investigating and discussing each disease in its totality from a multi-stakeholder lens. Rheumatic and autoimmune patients are chronically ill with no cures for their diseases in sight. Their diseases impact multiple parts of their bodies forcing them to interact with many different specialists and frequently utilize the healthcare system. Over a lifetime these diseases are expensive often prohibitively. This can be very challenging for patients as they interact with multiple specialists and are forced to self advocate through the red tape of the system. The goal of these panels is:
Help patients access, navigate and better manage their diseases.
Look for ways that Stakeholders can collaborate by aligning incentives to make it easier and more cost effective for patients and improve outcomes.
Examine potential collaborative care models for each disease and address the whole patient.
Examine how socio-economic status, minorities and gender impact patients and to seek out ways to support these underserved patients.
- Relevant Specialists: Specialists will be comprised of doctors that a patient with a specific disease interacts with over the course of their disease.
- OBGYN: woman with rheumatic/autoimmune disease face added issues
- Nurse Practitioner
- Mental Health Professional
- Payers (Employment Perspective)
- Researcher/ Data Scientist
- Nutritionist/ Wellness
- Telemedicine Expert